Dementia, God & Christian Faith

Dementia, Alzheimer’s, senility:  these words cause us to shudder with grief, or fear.  Polls indicate that we fear dementia more than we fear cancer.  All of us have loved someone whose mind became something unrecognizable, muddled, confused, forgetful.  I had a friend who died after suffering Alzheimer’s for a decade; his wife said it was as if he died not once but twice.

     I’ve been trying to think about dementia and God, dementia and faith, dementia and the church – and I’ve gotten a lot of help from a Scottish theologian named John Swinton.
The premise of his book, Dementia: Living in the Memories of God, is that in Christianity, well-being is not gauged by the presence or absence of illness or distress; well-being is defined by the presence of God, and God is not distant from the one with dementia, or from those who love someone with dementia.  How do we understand this sense of God’s presence? and then how to live faithfully with dementia?  What might those of us who aren’t dealing with dementia directly learn about our lives because of the way we think about those with dementia?

     In America, we define being human by what we think, how we talk, what we can do, how productive and interactive we might be.  What happens when we aren’t productive? or become passive recipients of the care of others?  This question applies not only to dementia but also to aging, or people with disabilities.  W.H. Vanstone write a marvelous little book called The Stature of Waiting, in which he explains how in the first half of each Gospel, Jesus is in command, boldly striding into new territories, conquering demons; he is a doer, in control of everything, even the wind and the sea.

    But then the mood changes abruptly. Jesus becomes reflective, less proactive, darkly hinting at his fate. He is “handed over” by Judas, to the authorities, and he does not fight back; he says nothing. He is no longer active, but passive.  His glory dawns not when he acts, but when he is acted upon.  Vanstone says this is hopeful for us, for our lives often traverse that same ground:  we grow old or sick and are increasingly forced to be dependent on others. We fear our identity is lost if we are not active and productive. But Jesus shows us that who we are, who he was, is found not in our activity but in what we suffer, in what we receive.